Living With Disability

Posted by yamada [www] 
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Living With Disability

I decided to make this post again which I did write one before dannychoo.com launched figure.fm. Some are already know about this I think. I just copy what I wrote on my blog.

I was born as a normal child and live like other normal kids. Most of my childhood filled with only playing with my cousins. I always got bullied by "friends" and I never fight them back because my dad told me so. To tell the truth I'm a crybaby that time.

Around 2002 during primary 6, my eyes starts being a bit blurry. I told my dad about it and he thought that I'm playing around and wanted to wear glasses. After few months during my tuition class, my teacher pointed my mistake that I put the number 9 instead of 5 for my answer and he told my dad to take me to the eye clinic. After few examinations we were told that I have Glaucoma and I started wearing glasses. I thought it's just a normal blurry eyes until the early 2003, I always feel the pain and discomfort around my head especially at the back as I'm going sleep.

On March 2004, I the discomfort feel behind my head started getting stronger as my head going to explode anytime and I also felt the pressure around my eyes. Everyday I looked at myself in the mirror my eyes were swollen so badly. I went to the eye clinic and the doctor said I am in a very critical condition and must undergo a surgery; if not I will lose my sight forever. Of course I'm scared that time, scared of both the surgery and losing my sight. My mom, devastated, cannot accept the fate that I will lose my sight that time.

For the whole April I didn't go to school because of the surgery and I didn't inform my teacher about it. After I got discharged from the hospital my sight was very blurry that time, I almost can't see anything, even what was written on the paper. After few months my sight gradually getting better and it seems that I'm a photosensitive. During my secondary school in Form 3, my teachers told my classmates about my visual impairment and told them to help me if I have a problem. After few weeks few of my classmates bullied me for having this disability and calling names to me. I told the teachers about it but the bullies still won't stop (even after got lectured by them many times) until the end of 2007. I've lived in solitude for 4 years (2004-2007), of course I only received supports from family members. Even after 2007 I still prefer being alone.

So now here I am, it's already 10 years and I'm still doing fine as always. Even though I'm affected by visual impairment I do look like a normal person.

  •  
    Mitsui in United States
    2012/01/28 02:23
    Registered on 2011/04/12. Cute Cashier Girl With Warm Smile ^_^
     

    What a touching story. I really do hope you recover soon. If you like, I would gladly be your friend :). You seem like a very nice person who needs a couple of good friends in their life. I can't imagine going to sleep and feeling pain in their head. If I had that I would feel so terrible as I am a sleep addict lol. I really do hope you get better or the doctors find a solution soon.

  •  
    NIIRU in The Netherlands
    2012/01/28 02:28
    Registered on 2010/06/29. Student, Gamer, G33kster
     

    I promised myself not to cry T_T
    As being a 4-eye's myself, I cant go out without my classes. But for now all I can say is:
    Yamada faito~!

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    Deedo in Dumpster of Utah [www]
    2012/01/28 02:31
    Registered on 2010/09/22. A little bit of everything.
     

    From my family we all have a bad eye condition and if i follow in my families foot steps i'll be blind by the time i'm 35-40. (gives me about 5-10 years)
    Kids are cruel, that's mainly because they don't know what there doing is bad or if they do then it's the "follow the bigger person". Like you I've been bullied for being short and small so that made me an easy target for anyone. Even till this day i don't think all teachers can really help the kids who are bullied mainly due to the double edged sword rule. Even if they tried to help the kids who are being bullied by punishing the kids who are picking on everyone they will come back and hurt the ones who they were bullying even more, or they think there helping by telling everyone about something they didn't want others to know about and only makes things worse. Of course this doesn't always work out like this and sometimes it will work out.
    Being picked on with only family helping you is very hard but even if i said stuff like, "be the better person", "don't pay attention to what they say" or even "try to talk to them" can't always be helpful either, so since this is just words here i can only say, Hang in there and do your best. We all go through some hard times in life, best thing we can do is push on for what life has to offer.

  •  
    Wieselhead in Germany [www]
    2012/01/28 02:37
    Registered on 2010/05/31. Student
     

    doing such a post takes some courage, Im sorry to hear about your disability,
    sounds like it was quite painful in the years before the surgery,is your eyesight a bit better now?

    These bullying idiots can be found everywhere, even when you have no disability.
    Anyway, such behavior is really unsocial and shows how rotten their personality is *rage*

  •  
    CAMP_KiRA in Bangkok [www]
    2012/01/28 03:37
    Registered on 2010/02/27. Student, Project Manger and Supervisor
     

    I have never told anyone about my disability. Eye, Ear, Legs and Health.
    Some from birth some later in life. My sister unable to be born so I still living it up. Her pink room still bother me.

    But, I DO believe as living human. Life goes on, until the END.
    Life can be a gift or a curse. But We ARE ALIVE. ^w^

  •  
    Worstluck in Vault 13
    2012/01/28 03:43
    Registered on 2010/01/23. StargazeR
     

    Well, since you can write a post that long with a CG of Lily from Katawa Shoujo (I love this game BTW), things are getting better with your eyes, right? At least I hope so.

    I just hate those bullying thing, I think it is important to protect yourself, both physically and mentally. Don't let those barbarians harms you, but meanwhile just ignore these pathetic people, whatever they say and whatever they do. they are so ignorant that they are doing wrong and still think they are cool, after all.

    Also this can be a chance to find nice people, good friends. Don't close your mind totally IMO.

    Hope things will get better with you, that's all.

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    Smithy in Neo-Venezia [www]
    2012/01/28 03:53
    Registered on 2008/05/20. ~Undine~
     

    Alas far too many people bully others they see as different. Hope your eyesight will improve. Hang in there!

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    Ragnablade in United States
    2012/01/28 04:03
    Registered on 2009/02/06. Mage
     

    #1 Take care your eye sight.
    #2 Children can be cruel. They act stupid and don't know any better.
    #3 Talk to adults more for advice. They used to be children and know what you're dealing with.
    #4 Keep living and always be welcoming. People will appreciate that and remember you into your adult life.

  •  
    BrainDeath in Halloween Town [www]
    2012/01/28 07:08
    Registered on 2010/04/11. Teddy Reaper
     

    This just makes me wish I was around to beat up the people that bullied you.

    Anyway hope your eyes get better soon.

  •  
    Rinnosuke in Unitied states [www]
    2012/01/28 09:53
    Registered on 2011/05/31.
     

    I myself was born with a few eye issues, one being that I am blind in my right eye.
    And as of the first week of this month, my left eye has been having issues, it has been quite emotionally taxing living with that constant fear of "Will I go blind?" Really all I can do is take it one day at a time and hope for the best.

    It was quite nice to be able to read this and know I am not alone in my fight. I wish you the best as you recover friend.

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    ShinnStargazer in MALAYSIA
    2012/01/28 13:21
    Registered on 2007/08/22. SMS Skull Squadron member
     

    Yamada~san...I hope your eyes will get better soon! You're strong! ^^

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    Naoki_Yasutaka in Betonamu (Viet Nam) [www]
    2012/01/28 14:18
    Registered on 2010/09/19. Student
     

    We never want something bad happen to us, but life is never as we expected. Until now, all I could say is I'm a lucky kid. So maybe I can't understand clearly what you or disabled people have to deal with everyday. All I can do is imagine what will happen if I'm in the disable condition, and with only imagination, it's far from what you guys have to suffer. But there is one thing I can be sure about is the way people look at you. In fact, we're all experienced it, not just you guys. The way it hurts when some people stare at you, judge you, and even bully you, discriminate you... It is one of the most painful things in the world. But we are living in the world of 7 billions people, so you are not alone and they are not the only kind of people in the world. There are always people who love you, need you and respect you. Now with internet, you can even expand your world larger.

    I'm just high school student, I still not experience the raw life. But I'm pretty sure that disabled people are fighting their own fight like many of us. We all have to fight our own fight against poverty, illness, discrimination... and those thing usually make us fight a handicap match against them too. We can win these fight, but not alone. Be nice to other people, learn from them, try to understand them, make friends, help them, sympathize with them... Don't judge people because they don't have arms or legs, ugly or cannot talk... Look at the way they live, that's what make our life better.

    P/S:To Yamada, your post have made my day ^^

    You have been doing a great job. You still move forward and that is the proof that there is NO BARRIER between the word "normal" and "disability". You can prove that " yes I'm disable, so what? It just make my days harder, just like you have to walk instead of using a bike or a car. So as long as I move forward, I AM STILL A NORMAN PERSON !" . All the people who treats to people just because they have disability is proving one thing, themselves have the most DESPISED kind of human : SOUL DISABILITY.

    So all I can do for you now is I wish you the best. Keep your head up and moving forward, hope miracles will wait for you ahead. And one of the most important thing is: Wish you make lots of good friends and have a nice family.

    My pleasure to know you :) (sr for the long post and my poor English XD)

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    Rei^Sama in Singapore
    2012/01/28 14:32
    Registered on 2012/01/05. Project Engineer
     

    Don't give up hope and believe in miracle! Continue to stay strong as ever and bare in mind that whatever things which don't collapse you makes you even STRONGER! I am sure you will be able to see like an eagle real soon! Regarding those making fun of you, I feel ashamed of them because they are weak and they make fun of the less fortunate in order to make them feel more superior... Very soon, these people will be regretting and pay for their action! Whatever goes up will eventually comes down (Law of gravity) and whatever fell on the floor will soon bounce up again (Law of action/reaction force)!!! You will be on your way up real soon!

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    mark47 in Philippines
    2012/01/30 14:03
    Registered on 2011/05/23. Student,Otaku,Gamer,Freelance Sales Representati...
     

    Thank you for your example. not only did you have the courage to share your experience to us, but you let us open ourselves to you as a community.

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    Wiguan in Malaysia [www]
    2012/01/31 15:24
    Registered on 2010/11/01. Media Student (Film & Television)
     

    Ah, worst case man.
    Glad you're fine now.

    But that doesn't make me not bully you around. :P


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